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Dance fundraiser for sick 7year old boy

Booking Information:
Date & Time: 3rd, March 2018 @ 19:00
Tickets: Contact school for info
Venue: Crowne Plaza Blanchardstown
Beechpark Lawn, Castleknock, Dublin 15.
Phone: 01 8214040 Fax: 01- 8248014

January 2018

I am writing to you as a representative of the Parent/Teacher Association (PTA) in Saint Brigids National School in Castleknock.
On the 3rd of March, our school Dinner Dance will take place in The Crowne Plaza Hotel in Blanchardstown. Traditionally, this annual event is organised by our PTA and run on a not-for-profit basis. This year, for a very significant and exceptional reason, we propose to use this event to support fund-raising for a pupil of our school who has been diagnosed with a serious incurable condition.

Vincent Lyons is a seven-year-old boy in First Class. Earlier this year he was diagnosed with muscular dystrophy. This is a rare genetic disease that causes weakness and loss of muscle mass. Symptoms of the most common varieties begin in childhood, primarily in boys. It can impact on a child’s ability to walk, to breathe and to swallow. Without medical intervention its impact can be very serious.

There is a medication that would help manage symptoms and slow the course of the disease. However, this drug is not on the HSE list and therefore not available to Vincent. The drug is also far too expensive for any one family. It costs €440,000 to purchase this drug for just one year – no mistake, a massive cost for a necessary intervention.

Further details of Vincent and his condition are available on his Facebook page, or on his website I am writing to you to ask you to support this Dinner

Dance in any way you can. It is a one-off event. On the night we will be holding an Auction for some special prizes. We are looking for prizes for this

Auction and also raffle prizes, sponsorship or any donation that you may be in a position to give. Not only will this Dinner Dance be a crucial element of the fund-raising drive, we hope that it will raise awareness about Vincent.

If you have any further questions, please do not hesitate to contact me by e-mail or the number below.

We hope that you can support Vincent and the Lyons family in this initiative.

Many thanks for taking the time to read this.

Yours sincerely,
Ailish Cantwell
Inspire PR
T: 01-8222330
M: 0876999159

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